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KMID : 0379920010260010075
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Journal of The Korea Socity of Health Informatics and Statistics
2001 Volume.26 No. 1 p.75 ~ p.88
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Informative evolution of cancer registry and cancer statistics
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이영성/Lee, Young Sung
구범환/천병철/Koo, Bum Hwan/Chun, Byung Chul
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Abstract
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The cancer registry systematically collects, stores, summarizes and distributes information about cancer patients who live in a particular geographic area or treated in particular hospitals. Usually cancer registries provide the most important cancer statistics(incidence rate, mortality rate, and additive information associated with survival, etc) to the public in each nations. The development of information and technology made it possible that the results of cancer registry could be used by users via internet in any time and in any place. The purpose of this study was to define the cancer registry process in informatical aspects, to classify the type of cancer information provided via internet and to describe the characteristics of these types in each case.
We defined the cancer registry as an information process from data to information and knowledge theoretically. We searched the cancer registry sites in internet with the key word ´caner registry´, ´Cancer ＋ registry´, ´ICD-O´ ´Cancer statistics´ and systematically explored the all 58 sites found. No quantitative analysis was done. We could classify all the sites into 3 categories by the type of cancer information provided. The first one was the ´report type´ which provided the cancer statistics and information in their original report type with the raw data in some cases. The second one was the ´web-database type´, in which the user could made conditional cancer statistics which he/she wanted with interactive buttons or selective sub-menus. The last one was the ´epidemiologic program type´ which provided the all of data, information and analytical tools with useful and delegate epidemiologic statistical models. All these 3 types had their pro and cons.
The cancer registry was an information process and should be developed as an open database architecture to achieve its original goal. This study made it clear how to provide the disease statisitics in infomation age, including cancer.
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KEYWORD
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